Blog Archives

By @ 05/08/12 in Cystic Fibrosis

May is Cystic Fibrosis Awareness Month.  There are several listings on eBay currently where a portion of the proceeds go to the Cystic Fibrosis Foundation.  Let’s get to a few facts about CF.  There are 30,000 children and adults in the United States that have CF.  There are more than 10 million symptomless American carriers of the defective CF gene.  There are about 1000 new people diagnosed a year and it occurs in one of every 35000 live births.

What can you do to help during the month of May?  You can walk in Great Strides, be an advocate for people with Cystic Fibrosis, and download the “Cure CF” iphone app.  Also you can use social media to get the word out as the Cystic Fibrosis Foundation has various social media outlets such as facebook, twitter, google +, and youtube.  Also if you have a story to tell about yourself or someone you know who has cystic fibrosis that has battled the disease but led a strong meaningful life please contact me and I will be glad to post about it.

By @ 05/07/12 in Cystic Fibrosis, eBay

By @ 05/02/12 in Cystic Fibrosis

May 3, Thursday on OWN at 9/8 c you can catch the documentary 65_RedRoses about Eva Markvoort and her two online friends who are all battling cystic fibrosis.  It will inspire others to appreciate the life they have plus learn more about the disease cystic fibrosis.  It also hopes to generate an increase in organ donor rate.  This film was made by two young filmmakers, Philip Lyall and Nimisha Mukerji.  Please let us know your thoughts after watching it.

By @ 04/29/12 in Cystic Fibrosis

In the United Kingdom starting April 29 and running through May 5, 2012 will be Cystic Fibrosis week.  This idea was launched by Ben Shephard, celebrity patron.  In a blog post he asked people to get involved to bring awareness to CF.  Supporters will be asked to sign an e-petition so that prescription costs for people with CF do not see an increase.  An exclusive film will be launched on the CF week website April 30 to celebrate cystic fibrosis week.  Please check out the links for more information.

By @ 04/22/12 in Cystic Fibrosis

Cystic fibrosis causes severe lung damage and deficiencies in nutrition.  It is a life threatening disease that is inherited.  It happens most often in white people of northern European ancestry.  With much improved medicine and screening in recent years people living with cystic fibrosis can now leave much longer lives, into their 50s and longer.  Before all the advancements were made most people with CF (cystic fibrosis) died in their teens.

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